SB 980

  • California Senate Bill
  • 2019-2020 Regular Session
  • Introduced in Senate Feb 11, 2020
  • Passed Senate Jun 25, 2020
  • Passed Assembly Aug 30, 2020
  • Governor

Privacy: genetic testing companies.

Abstract

Existing law, the California Consumer Privacy Act of 2018, provides various protections to a consumer with respect to a business that collects the consumer's personal information, including biometric information such as the consumer's deoxyribonucleic acid (DNA) . The act requires a business that collects a consumer's personal information to, at or before the point of collection, inform the consumer as to the categories of personal information to be collected and the purposes for which the information will be used, and grants to a consumer the right to opt-out of the sale of the consumer's personal information by the business to a third party. Existing law also prohibits the disclosure by a health care service plan of the results of a test for a genetic characteristic to a third party in a manner that identifies or provides identifying characteristics of the person to whom the tests results apply, except pursuant to a written authorization. This bill would establish the Genetic Information Privacy Act, which would require a direct-to-consumer genetic testing company, as defined, or any other company that collects, uses, maintains, or discloses genetic data collected or derived from a direct-to-consumer genetic testing product or service, or provided directly by a consumer, to provide a consumer with certain information regarding the company's policies and procedures for the collection, use, maintenance, and disclosure, as applicable, of genetic data, and to obtain a consumer's express consent for collection, use, or disclosure of the consumer's genetic data, as specified. This bill would require a direct-to-consumer genetic testing company, or other company as described above, to honor a consumer's revocation of consent in accordance with certain procedures and to destroy a consumer's biological sample within 30 days of revocation of consent. The bill would further require a direct-to-consumer genetic testing company, or other company as described above, to comply with all applicable laws for disclosing genetic data to law enforcement without a consumer's express consent, implement and maintain reasonable security procedures and practices to protect a consumer's genetic data against unauthorized access, destruction, use, modification, or disclosure, and develop procedures and practices to enable a consumer to access their genetic data and to delete their account and genetic data, as specified. The bill would exclude the California newborn screening program from its provisions. This bill would impose civil penalties for a violation of those provisions, as specified. The bill would require actions for relief pursuant to these provisions to be prosecuted exclusively by the Attorney General, a district attorney, county counsel, city attorney, or city prosecutor, as specified, in the name of the people of the State of California upon their own complaint or upon the complaint of a board, officer, person, corporation, or association. Because the bill would require local officials to perform additional duties, the bill would impose a state-mandated local program. The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement. This bill would provide that, if the Commission on State Mandates determines that the bill contains costs mandated by the state, reimbursement for those costs shall be made pursuant to the statutory provisions noted above.

Bill Sponsors (4)

Votes


Actions


Sep 25, 2020

Senate

In Senate. Consideration of Governor's veto pending.

Senate

Vetoed by the Governor.

Sep 09, 2020

California State Legislature

Enrolled and presented to the Governor at 3 p.m.

Aug 31, 2020

Senate

Assembly amendments concurred in. (Ayes 39. Noes 0.) Ordered to engrossing and enrolling.

Aug 30, 2020

Assembly

Read third time. Passed. (Ayes 69. Noes 0. Page 5307.) Ordered to the Senate.

Senate

In Senate. Concurrence in Assembly amendments pending.

Aug 25, 2020

Assembly

Read third time and amended.

Assembly

Ordered to third reading.

Aug 24, 2020

Assembly

Read second time. Ordered to third reading.

Aug 20, 2020

Assembly

From committee: Do pass. (Ayes 15. Noes 1.) (August 20).

Aug 18, 2020

Assembly

August 18 set for first hearing. Placed on suspense file.

Aug 10, 2020

Assembly

Read second time and amended. Re-referred to Com. on APPR.

  • Reading-1
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on APPR.

Aug 06, 2020

Assembly

From committee: Do pass as amended and re-refer to Com. on APPR. (Ayes 10. Noes 0.) (August 4).

Aug 03, 2020

Assembly

From committee with author's amendments. Read second time and amended. Re-referred to Com. on P. & C.P.

  • Reading-1
  • Committee-Passage
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on P. & C.P.

Jul 28, 2020

Assembly

July 28 hearing postponed by committee.

Jul 27, 2020

Assembly

From committee with author's amendments. Read second time and amended. Re-referred to Com. on P. & C.P.

  • Reading-1
  • Committee-Passage
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on P. & C.P.

Jul 09, 2020

Assembly

July 14 hearing postponed by committee.

Jun 29, 2020

Assembly

Referred to Com. on P. & C.P.

  • Referral-Committee
Com. on P. & C.P.

Jun 25, 2020

Assembly

In Assembly. Read first time. Held at Desk.

Senate

Read third time. Passed. (Ayes 36. Noes 1. Page 3864.) Ordered to the Assembly.

Jun 22, 2020

Senate

Read second time. Ordered to third reading.

Jun 18, 2020

Senate

Read second time and amended. Ordered to second reading.

Senate

From committee: Do pass as amended. (Ayes 5. Noes 1. Page 3768.) (June 18).

Jun 11, 2020

Senate

Set for hearing June 18.

Jun 09, 2020

Senate

June 9 hearing: Placed on APPR. suspense file.

Jun 03, 2020

Senate

Set for hearing June 9.

May 29, 2020

Senate

Read second time and amended. Re-referred to Com. on APPR.

  • Reading-1
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on APPR.

May 28, 2020

Senate

From committee: Do pass as amended and re-refer to Com. on APPR. (Ayes 7. Noes 1. Page 3583.) (May 22).

May 12, 2020

Senate

Set for hearing May 22.

Senate

Referral to Com. on PUB. S. rescinded due to the shortened 2020 Legislative Calendar.

Apr 30, 2020

Senate

From committee with author's amendments. Read second time and amended. Re-referred to Com. on JUD.

  • Reading-1
  • Committee-Passage
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on JUD.

Mar 17, 2020

Senate

From committee with author's amendments. Read second time and amended. Re-referred to Com. on JUD.

  • Reading-1
  • Committee-Passage
  • Amendment-Passage
  • Referral-Committee
  • Reading-2
Com. on JUD.

Feb 20, 2020

Senate

Referred to Coms. on JUD. and PUB. S.

  • Referral-Committee
Coms. on JUD. and PUB. S.

Feb 12, 2020

Senate

From printer. May be acted upon on or after March 13.

Feb 11, 2020

Senate

Introduced. Read first time. To Com. on RLS. for assignment. To print.

Bill Text

Bill Text Versions Format
SB980 HTML
02/11/20 - Introduced PDF
03/17/20 - Amended Senate PDF
04/30/20 - Amended Senate PDF
05/29/20 - Amended Senate PDF
06/18/20 - Amended Senate PDF
07/27/20 - Amended Assembly PDF
08/03/20 - Amended Assembly PDF
08/10/20 - Amended Assembly PDF
08/25/20 - Amended Assembly PDF
09/03/20 - Enrolled PDF

Related Documents

Document Format
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Sources

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